RCSI research finds major gaps in rehabilitation care for brain tumour patients
There are significant gaps in rehabilitation services for those diagnosed with a brain tumour in Ireland, according to new research from the Royal College of Surgeons in Ireland.
The research from the RCSI University of Medicine and Health Sciences highlights a need for further investment in specialist care, clearer referrals and much improved supports for patients and their families.
The findings show that 70% of healthcare workers who were surveyed reported long waiting lists for rehabilitation services, with 61% citing a lack of defined care pathways for patients with brain tumours.
Around 700 adults are diagnosed with a brain tumour in Ireland every year, and this brings with it a range of cognitive, physical and other difficulties that can affect their overall quality of life.
Dr Ailish Malone, Senior Lecturer at RCSI School of Physiotherapy, said: “People diagnosed with a brain tumour often receive intensive, highly specialised medical care in hospital, but once they return home, that level of support can fall away dramatically. Patients and families can find themselves navigating a fragmented system, without a clear pathway to the rehabilitation they need.
"We hope this research will help inform policy and service planning so that rehabilitation becomes a more accessible and integrated part of care, not something patients and families have to fight to access."
Fiona Keegan, CEO of Brain Tumour Ireland, added: “A brain tumour diagnosis can have a profound impact on patients and their families, who are often left navigating a complex healthcare system at an incredibly difficult time.
"The Brain-Restore findings reinforce the urgent need for better access to rehabilitation and more joined-up care. While we hope these recommendations will lead to meaningful improvements in services, we are also proud to have co-funded these educational videos, bringing together the experiences of patients, families and healthcare professionals to provide practical information and support for those affected."