Meath hosts Ireland's largest gathering for the country's EB community

Dunboyne Castle and Emerald Park outside Ashbourne were the venues for the annual gathering of those living with EB, along with their families and carers.

The biggest gathering of Ireland’s epidermolysis bullosa (EB) community took place in Co Meath over the Bank Holiday weekend, in what was described as a ‘magical experience’ for families.

An average of 300 people in Ireland live with the inherited and extremely painful skin condition.

It is caused by missing proteins between the skin layers, often resulting in painful blisters at the slightest touch or contact.

Dunboyne Castle and Emerald Park outside Ashbourne were the venues for the annual gathering of those living with EB, along with their families and carers.

“It really was a magical experience for everyone who attended, an estimated 200 in total,” said Deirdre Callis, Head of Family Support Services with Debra, the national charity supporting those living with EB.

“It was fantastic to see everyone relaxing, enjoying time together in a social setting and sharing experiences and advice.

“Peer support is powerful and we’re already looking forward to bringing people together at future events.

“The ability for those with EB to share their experiences with each other, whether that’s pain management, concerns about related health issues or even sharing good news, can not be underestimated.”

Dinner and entertainment, along with updates from Debra’s family support and communications teams, were laid on for guests at Dunboyne Castle on Sunday evening.

And on Monday, the thrillseekers descended on Emerald Park for a day of fun-filled excitement.

Because the friction of walking or standing for long periods often affects the feet of those with EB, participants were allowed to use mobility scooters around the theme park.

The special guests were also given fast passes to avoid them standing in long queues.

For more information on EB, visit debra.ie.